Father-daughter duo Ray and Meredith Huml team up with friends at the FSHD* Society to provide a “friends and family” view into the ways patients and advocates join hands with pharma to develop solutions.
Speakers:
- Ray Huml, VP, Medical & Scientific Affairs and Rare Disease Consortium Lead, Syneos Health
- Meredith Huml, Communications Assistant, Disability Rights NC, FSHD Patient
- Mark Stone, CEO, FSHD Society
- Jashmid Arjomand, PhD, Chief Science Officer, FSHD Society
*Facioscapulohumeral muscular dystrophy
